IDefine
IDefine is a nonprofit organization that exists to provide a central community for families affected by Kleefstra Syndrome (KS).
THE MISSION: TO DISCOVER LIFE-CHANGING TREATMENTS AND CURES FOR THOSE WITH INTELLECTUAL DISABILITIES STEMMING FROM
GENETIC DISORDERS.
IDefine plans to discover and bring to market life-changing treatments for Kleefstra Syndrome patients. In doing so, they demonstrate that Intellectual Disability (ID) disorders are in fact treatable conditions, in the same way that disorders of mental illness have become treatable with drugs over time.
In consultation with their Scientific Advisory Board, they pursue the most promising avenues for drug development, and “go where the science takes us”. A range of approaches are being reviewed, including small-molecule drug repurposing, small molecule drug development, oligonucleotide-based therapies, or gene therapies.
THE VALUES:
IDefine was created to bring about the future they know is possible for children and others living with Intellectual Disabilities – a future in which loved ones have the tools they need to define their own path. Their core values guide each action they take in the journey to living in this reality.
Defining a New Future: They adhere to the wisdom of Nelson Mandela: “It always seems impossible until it is done.”
Enjoying the Journey: They build relationships with gratitude, laughter, and camaraderie. They embrace challenges.
All In: They are 100% committed to getting the results they want.
Relentlessly Collaborative: They are driven to find the answers. They encourage open conversations. They don’t know strangers.
Unshakable: They remain “calm in the pocket” when things get tough. With laser focus, they make the uncomfortable comfortable.
Raw Authenticity: What you see is what you get. They are real with no agendas other than to help others.
$.50 per every bowl of ramen sold during the month of December will be donated directly towards discovering life-changing treatments and cures for
Kleefstra Syndrome patients (KS). To learn more, please visit, www.idefine.org.
*You are donating directly to IDefine. Eat Justice receives 0% of the proceeds.